Newsletter

Leadership Notes
January 2001

Leadership Material

Would you like to know more about effective ways of leadership? Need support, motivation, & recommendations? Here are a few resources that will offer some insight…

Are you a parent who surfs the net? Here are a couple of new web sites…

Moms on the Net. This web site is an "e-zine" for moms who surf the net. It offers articles on parenting, careers, relationships and more. There are also links to various resources and working at home. For more information, or to subscribe, go to: www.topica.com/lists/Momsonthenet

Fathers On Line! www.fathersonline.com offers a place where fathers can gather to share their knowledge, and assist & empower other fathers. All fathers are encouraged to speak out! You can become a member, tell others what works for you & what help you may need. A live chat allows users to share resources & become active members. Fathers on line also feature links related to fatherhood & a message board where users can read questions & post answers.

Governing, Leading & Managing Nonprofit Organizations by Dennis Young, Robert M. Hollister, Virginia A. Hodgkinson & Associates, (1993) published by Independent Sector Publications, P.O. Box 451, Annapolis Junction, MD 20701. Tel: (301) 490-3229, Fax: (301) 206-9789. Put out by the Research Forum on Leadership & Management, the book describes what is unique about leadership in the non-profit sector. It provides insights into how managers, board members & other leaders in the non-profit sector can meet challenges of governance & administration.

Grassroots & Nonprofit Leadership: A Guide for Organizations in Changing Times by Berit Lakey, George Lakey, Rod Napier & Janice Robison, (1995) published by New Society Publishers, 4527 Springfield Avenue, Philadelphia, PA 19143. To order call: 800-333-9093 Tel: (215) 382-6543 Fax: (215) 222-1993. This book is for organizations that work for social change. It is informative and instructive for non-profit, community-based organizations facing the challenge of increased service/support demands while also having more restricted sources of funding or sustainability. The book features suggestions for dealing with diversity, inactive or overactive boards of directors outreach staff burnout, rapid turnover & power struggle.

Creating, Sustaining & Enjoying the Journey: Collaboration Handbook, to order contact Amherst H. Wilder Foundation Publishing Center 919 Lafond Avenue, St. Paul, Minnesota 55104, Tel: 800-274-6024 Fax: (612) 642-2061. The handbook is a step by step guide to developing a collaborative effort. Part 1 provides a story describing the stages & challenges ahead. Part 2 explores factors that make or break collaboration, competition, ideology, resources, leadership, power, & history.

The Down Syndrome Network offers a range of information, resources & online services to the international Down syndrome community. It provides information & services for families, caregivers, professionals & researchers. It also provides articles, books, a discussion list & new services about various issues and topic areas, including Adolescence Adulthood Education, Early Development, Health, Infancy, Language, and related International Issues. If you would like to order books or articles you can go to www.down-syndrome.net. The Development of Language & Reading in Children with Down Syndrome: Memory Training for Children with Down Syndrome describes practical steps for encouraging memory development with simple memory games.

MCH Alert! The National Center for Education in Maternal & Child Health (NCEMCH) seeks to make maternal & child health (MCH) news & policy more accessible to policymakers, teachers, advocates, students & researchers in the field. There is a free weekly electronic newsletter. MCH Alert provides timely MCH research & findings, policy developments, information on recent publications, conferences & new programs affecting the MCH community. Every Friday the newsletter is distributed across the country to many members who are a part of the listserv. Subscribers on the listserv can review past archives, subscription information, have access to other links & resources & to specific topics in past issues of the newsletter. The National Center for Education in Maternal & Child Health is located at 2000 15^th Street, North, Suite 701, Arlington, VA 22201-2617 Tel: (703) 524-7802, Fax: (703) 524-9335. If you would like more information on MCH Alert please visit the web site at www.ncemch.org.

Project News… The ICC Parent Leadership Support Project announces that its new project co-directors are Richard Robison, Executive Director of the Federation for Children with Special Needs, and Barbara Popper who has worked on the NECTAS Financing Team and on Family Voices’ maternal and child health projects at the Federation. Rich and Barbara are working with Brad Arndt and Marilyn Gutierrez to arrange the first ICC Parent Leadership Institute this spring. Dates and locations are being finalized. States interested in learning more about the Institute should contact either Barbara (617.236.7210 x 122; bpopper@fcsn.org) or Rich (617.236.7210 x 183; rrobison@fcsn.org).

Just a reminder! Send us your important documents related to council work: by-laws, training agendas, brochures—anything that will help ICC parents in other communities! We’re hoping to expand our resource files! Our address is: The Federation for Children with Special Needs, 1135 Tremont Street, Suite 420, Boston, MA 02120. (800) 493-2338 x211

If you have any stories, articles or topics you would like to share in future editions of our newsletter, please contact Marilyn Gutierrez at (800) 493-2338 x151 or via email at marilyng@fcsn.org.

As always, check out our web site for more details: www.iccparent.org